Wednesday, January 04, 2017
16-year-old Talea Martin has been sick since January of 2016 and her illness has been progressively worsening. In April 2016 she was finally diagnosed with P.O.T.S. and EDS. In August her genetic tests came back which revealed an array of other chronic illnesses also, including:
Mitochondrial Dysfunction
Mast Cell Activation Disorder
Autoimmune Disease
Dysautonomia
P.O.T.S. – Postural Orthostatic Tachycardia Syndrome
E.D.S. Type 3 – Ehler’s-Danlos Hypermobility
Thankfully her mom Melissa is employed and has insurance, but insurance doesn’t pay for everything. Melissa is a single mom of 2 teenagers so the extra medical bills are rapidly pulling her down financially, and unfortunately her earnings are just above the limits to qualify for any assistance. Melissa also misses so much work with all of Talea’s doctor appointments, medical tests, sudden ER visits and unexpected hospital admissions that she must get up at 4 a.m. to make up her missed hours at work whenever she is able. Then, if she is able to work her entire shift, Melissa doesn’t arrive back home until just before 5 p.m. and even though she is home that doesn’t mean she gets to sit down or relax. It’s just the My 16 y/o granddaughter has genetically linked Chronic Illness’ as result of common virus contracted Jan 2016. Most difficult & scariest to manage is P.O.T.S. Mom is single of 2 teenagers, has great full-time job but can’t keep up financially w/ongoing medical bills + household + normal son needs. She misses lots of work 4 hospitalizations, medical tests, Specialist visits, etc. Works O/T 2 make up missed hours. Chronic Illness causes complex family problems. While whole world of child w/chronic illness is turned upside down lives of entire family dramatically changed. Parent’s main focus becomes health & well-being of child w/chronic illness leaving less time 2 be with and help rest of family. Siblings often feel neglected, used, guilty, anxious, angry, lonely, resentful, jealous, misplaced, depressed, withdrawn, rebellious, unwanted & in the way. These siblings of chronically ill child are loved no less but they may not feel or understand that love. Rather, they feel left behind to survive in the shadows of needs of chronic health problems. They’re known as Shadow Child of Chronic Illness, or Shadow Siblings.
Invisible Chronic Illness. Whatever you wish to call it, one in three workers now have a disease that effects their efficiency at work. Compared with serious illnesses, serious circumstances are unforeseen, invisible and durable. I know from experience that this concept is difficult for many individuals comprehend.
Mitral valve postural orthostatic tachycardia syndrome with Dysautonomia
A syndrome is a collection of symptoms, which has more than one cause, whereas an illness has an individual cause. MVPS/D has an identifiable design of symptoms and indications. As the doctors and scientists comprehend, the twelve symptoms and symptoms reflect a failing of management systems, specifically in the neurological program. The more they learn about the problem, the more likely they will be able to find an individual cause and turn MVPS/D to chronic illness POTS illness status.
The neurological program is split into two parts: non-reflex and unconscious. The unconscious neurological program, also known as the autonomic neurological program (ANS), is more complex and manages most bodily processes such as body’s temperature, sweating, blood pressure level, pulse rate, salivation, student dilation and shrinkage, sleep-wakefulness balance, abdominal features, digestive function, and many others. This technique has two major divisions: supportive, which rates of speed up the program, and the parasympathetic, which decreases the program.
Here are five misconceptions about constantly ill employees:
They are either “sick” or “well’.
Unlike many individuals, those with actual circumstances often experience fed up every day. For them sickness is often a matter of degrees.
They cannot be fed up. They do not look sick
Your worker may not tell you they are sick
Depending on the infection, the worker may not display visible symptoms and symptoms of illness even when they are sensation quite badly. When I am really fed up I do display it, but many times, I experience dreadful but look “normal”.
They cannot be fed up. They do not act sick
The ill person knows when they have to get through the day. Over the years, I have developed systems that allow me to function “normally” even when I am in a lot of pain or pain. It takes a lot of effort and is psychologically and physically stressful but I do not display it at work.
At least they have the weekend/evening to relax.
If you have read factor number 3, you realize that it is easy for the constantly fed up worker to be totally and tired just getting through a “normal day”. Many times, I spend so a time fighting to be professional and courteous through pain or exhaustion that the last thing I want to do is talk to friends or interact socially.
If they are fed up, they should not be at work
While I agree with this to a spot, the fact is that if someone with a serious situation took a day off perform whenever they did not experience one-hundred-percent, many would never come in to act on all. I know there are certain tasks I can still do despite my pain or pain. I would rather come in and do them rather than have them load up for me to do the next day when I may be sensation just as fed up as I am today.
As you can see, lifestyle with a certain illness can be complicated. It is important to keep a balanced view and not jump too quickly to results.
Jason Reid runs Sick with Achievements – a certain illness training and business solutions company.
Jason creates and talks on issues surrounding certain illness and success on the job. He trainer’s individuals with certain illness who still wish to play a role at an advanced level at work or in the community. He also teaches organizations about areas faced by those with invisible, certain illness.
Jason Reid has fought P.O.T.S. – Postural Orthostatic Tachycardia Syndrome illness for most of his lifestyle. He also is skilled managing workers pushed by cancer, arthritis, depression and other serious illnesses.
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